Kevin Burns Update, December 18: As will 2024, Chapter 1 of my cancer Journey has come to an end. After 6 weeks in Tampa, with my son at the wheel, I finally made my way back home to a beautiful Friday the 13th (poetic, eh?) Panhandle Fall afternoon. Praise be to God! Candidly, I was not certain that I would ever see Niceville, again. The people I have to thank for carrying me and my family this far are so special and too numerous to mention. I suspect this adventure has been much harder on my beautiful spouse, Debi, than it has been on me, but throughout, she has portrayed amazing grace, faith, and resilience, and for that I feel so blessed and thankful.
If you know anything about having cancer, you know the threat never really ends. I will start a 10-year monitoring program in February with my old friend, Dr Lee, at MD Anderson in Houston – aggressive in the beginning and tapering off frequency-wise, over time if I remain cancer free. Right now, there is no plan for pre-emptive treatment. I have been advised that if my cancer recurs, it it is 80% likely to recur in the first year of remission. So please continue to pray for us, as we will for you.
I recently read a book, tailored for hard times, called The Red Sea Rules. I found it interesting and reassuring how many of those rules I unknowingly tried to follow over the past 12 months, especially #5 & #6. I highly recommend giving them some thought. Christmases this read our Christmas Gift to you all!
God Bless, Merry Christmas, and Happy 2025! I know it will be very special for all of us!
November 28: Recovery has gone slower than hoped, so we made the decision to extend our stay in Tampa until 15 Dec and maybe even until the 21st. The new normal hopefully temporary, is strange and at times, scary, to include Debi having to become an open wounds care expert. We definitely didn't see that one coming.
On the plus side, I read both the surgery and the tissue (pathology) reports, and everything was textbook. Best news is that the path report allows me to say for at least this moment in time, I am a Cancer Survivor! We meet with my surgeon on Monday for the way-ahead plan for surgical recovery, and then I Video Visit with my medical onc at MD Anderson to map a long-term Strategy to avoid getting cancer-surprised a second time!
We had a small family Thanksgiving celebration last Saturday where Debi asked us to write down the top three things we were thankful for. Mine were Faith, Family/Friends, Doctors. In the latter category, I had eleven working my problem – Lee, Newhook, Cordero from MDA; Kudali, Simons from Houston Meth; Wright from Sacred Heart, Pensacola; Henry Hsaing from Emerald Coast Cancer Center Ft Walton Beach; Ennis from Ft Walton Beach; Sucandy from AdventHealth Tampa; and two of my closest, forever doctor friends, Dom Paparella from Chicago, and Nancy Cook from Virginia. When God says that He will lift you up when your burden gets too heavy, these were the shoulders he placed me on.
Even in an often challenging recovery, it is impossible to ignore God's Provision for us. His Will Be Done.
November 15: (two days after hospital release): Life has been Miraculous, but Very Challenging. It appears that under God's provision, the doctors and extensive hospital support team worked their surgery and recovery magic, stepping me back from the abyss, with all subsystems more or less working as hoped. Still no final confirmation that all cancer has been removed, but I’m confident that that assessment will come shortly. I was released from the hospital two days ago to our Tampa AirBnB. Only lingering, concerning affect is a deep fatigue making life groggy and difficult to accomplish anything but sleep. There are also a few internal leaks that we are keeping an eye on. I have about three weeks to "right the ship" before we hopefully head home to Niceville FL on 8 Dec (about a 7-hour drive). Thanks for your overwhelming outpouring of support, prayers, and encouragement to me and my family. It is a blessing that we will never forget.
November 8: (day after surgery): I am still alive and truly grateful. It appears that the doctors removed all the cancer. It will be a long and significant recovery, although I'm doing about as well as can be expected for this type of procedure. Continued prayers please for healing, pain management, and eating again.